by Elizabeth Tromm - Used by permission
https://wingingthislife.wordpress.com/2016/05/11/life-with-apraxia/

Earlier this year we were told that Carter has Apraxia. While I thought
I was handling it well and dealing with this news, I still struggle with
it at times. Thankfully I have a great support system in my family and
when I called my oldest sister one day to talk to her about it, she said
something that I really try to keep in the forefront of my mind. She
said, “It could have been worse, he could have died. Or, you could
have been dealing with multiple complications or more severe
issues.” You know what? She is right. There is so much for us to be
thankful for in Carter’s life, and counting our blessings is what I try
to do.
But there are some nights I just can’t sleep thinking about ways to
help Carter communicate better, ways that I can be more patient
with him, ways to keep him engaged in wanting to learn during
therapy sessions and when I work with him at home, ways to encourage
him for working so hard on his therapy. Then there are nights where
I just sit and look at his speech cards, his props, the learning apps,
and I wonder, “Is he going to be able to talk clearly?” “Is he going to
have more struggles in life than my girls?” “How is this going to
affect him emotionally?” “What do I tell him when someone teases
him about the way he talks?”
We were out shopping one day last week and Carter saw something
that made him so excited!! When he gets really excited his words
become jumbled terribly and his stutter is more pronounced.
He also talks louder and louder and louder. So he was trying to
tell me something and as he was talking this woman walked by
starring at him and then turned around and continued to stare. In that
moment I felt pain and anger, and I went home and I shed a few tears,
and I squeezed my boy a little tighter. I ache the way a mother might
when we know that inevitably our child is going to be hurt one day.
I can’t protect him from ignorant people all of the time, I can’t protect
him from his peers, but I can teach him how to be confident
and secure in who he is and whose he is. And so, as we navigate
this season of life we laugh, we love, we cry, we become frustrated,
we celebrate victories and success, and we try to encourage each other
every single day.